NEWS RELEASE
DEFEAT DUCHENNE CANADA
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On Sept. 9, 2024, Collingwood will join a powerful nationwide movement by adding a touch of red to its skyline for World Duchenne Awareness Day.
The town hall clock tower will stand as a beacon of hope, shining a light on Duchenne muscular dystrophy, a rare but relentless condition affecting over 800 boys and young men across Canada.
In the face of this devastating disease, every moment counts. Duchenne’s rarity often leads to a maze of misdiagnoses, robbing precious time from those affected.
“This is why our mission to raise awareness is crucial — for these families, time is muscle,” says Lisa McCoy, CEO of Defeat Duchenne Canada. “We are working every day to ensure that each child facing a Duchenne diagnosis has a fighting chance through swift access to cutting-edge treatments and care that can preserve their muscles and extend their lives.”
In a remarkable show of solidarity, more than 25 monuments and landmarks across the nation have answered Defeat Duchenne Canada’s call to help connect families and raise awareness. This united illumination serves as a powerful reminder of the critical need for accessible treatments and groundbreaking research that could lead to a cure.
“Each red light this weekend represents our community’s unwavering commitment to those battling Duchenne. It’s a call for access to treatments, earlier diagnoses, better support and care, and increased funding for research,” states McCoy.
All residents of Collingwood and the surrounding communities are encouraged to be a part of this inspiring display of unity by visiting the town hall clock tower on Monday, Sept. 9 at 8 p.m. EDT to witness first-hand the power of community in action. But don’t stop there — join the wave of support by decorating your homes, schools, offices, or hospitals in radiant red as a symbol of a brighter future for those affected by Duchenne.
Share the photos of these landmarks and buildings on social media, tagging @DefeatDuchenne across all platforms to spread the message further. Those who are moved to share their personal journeys or are eager to learn more about Duchenne muscular dystrophy can contact Bobbi Vasher at [email protected].
Learn more at defeatduchenne.ca.
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